Two things we have built and backed outside the car wash: an app that lets a patient show a doctor what a year of symptoms actually looked like, and a ten-year push to make rare disease care something patients do not have to fight for.
A symptom tracker built for MCAS rather than adapted to it. Patients log triggers, reactions, medications and symptoms over time, and the app turns that history into something a doctor can read in a minute instead of a story told from memory in a ten-minute appointment.
Free on iPhone and Android. It is run as a nonprofit, so any surplus goes back into research, patient assistance and access.
A ten-year commitment to reshaping rare disease care by 2030, bringing together young advocates, scientists and patients around one question: why are MCAS and rare disease patients still being left behind by the medical establishment, and what would it take to change that.
